In 2015 the average person in the UK spent over 31 hours online each month. With society increasingly migrating their lives from the physical realm to the digital realm end of life planning is becoming increasingly fragmented and difficult.

Support material to use on your website and resources

Have you documented - digital death survey

Data shown is from the Digital Death Survey 2018 (in partnership with Siena College).

  • Digital Legacy Association images for use on external websites  (click on the images below to view. Then right click and save / download the image if you would like to use it.

Digital Legacy Association     Livinfographic   Digital Legacy Conference icon banner    

Training slides

We have developed and made training slides available for free to professionals and carers

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To download the presentation click on the following link (PDF download). To learn more about our training courses click here.

Public facing resources & publications

Below are links to a number of public resources that we have either developed or been included in.

Features on hospice websites

News Contributions

We have provided insights on BBC News, CNN, Channel 4 News and for range of TV programmes and publications. If you would like someone from the Digital Legacy Association to contribute or support you when researching this area get in touch. 

If you require support developing your resources or would like us to run a training course click here

Press Releases

We no longer publish press releases. The press releases released between 2015- 2016 can be found below.

  • Digital Legacy Association is launch to help professionals (10th November 2015) – Press Release
  • Do we “unfriend” our Facebook friends after they die? by The National Council For Palliative Care (13th May) Press Release
  • The Digital Legacy Association urge professionals to better support patients with their digital estate. (14h May 2016) Press Release

Why this is important…

We would like to thank those who have provided kinds words and encouragement for what we have embarked on.

Ros“Social media has a key place in our lives now, and we are learning that it becomes even more crucial as people face the end of their lives. It helps patients stay connected and boosts self esteem. But patients and those special to them don’t know how to manage this personal vital resource after a death – memories, music, photos and messages are lost. We are delighted that the Digital Legacy Association is being launched at our annual Hospice UK Conference for over 700 staff working with families at the end of life”

Dr Ros Taylor MBE – Medical Director at Michael Sobell House Hospice & Former National Director for Hospice Care, Hospice UK

Clare Henry“Ensuring people understand how to protect and pass on their digital legacy is an increasingly important issue, which is why we are delighted that the Digital Legacy Association has been launched. Talking more openly about dying, death and bereavement benefits us all, as does putting plans in place for when we are dying, and for after our death.”

Claire Henry MBE – The Loss Project & Former Chief Executive of the Dying Matters

St Christopher's“In recent years, the ways people choose to remember deceased family members and friends has changed. Trips to the cemetery are replaced by online memorials and social media sites which can be updated regularly and accessed freely. Healthcare professionals need to engage with service users to discuss digital legacies. This, in turn builds confidence in discussing dying, death and bereavement. St Christopher’s are pleased to have supported DeadSocial in the foundation of the Digital Legacy Association.”

Ruth Sheridan – Director of Supportive Care, St Christopher’s Hospice.

Dr Mark Taubert“The number of people living with life-limiting conditions requiring good forward planning for when they get unwell is vast. In hospices, the community and in hospitals, many patients are asking their healthcare providers questions about dying, death and what happens after, including their digital possessions. Many healthcare providers do not know what advice to give with regard to the important issue of digital advance planning. The Digital Legacy Association should become a ‘go to’ organisation which patients, carers and healthcare providers can use for valuable information and resources.”

Dr Mark Taubert – NHS Velindre Trust & NHS Bevan Commission Senior Fellow

If you require support developing your resources or would like us to run a training course click here

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