In 2015 the average person in the UK spent over 31 hours online each month. With society increasingly migrating their lives from the physical realm to the digital realm end of life planning is becoming increasingly fragmented and difficult. Below are links to a number of professional support resources that you may find of value.
- Our Digital Asset and Digital Legacy Framework
- DeadSocial’s tutorial hub
- The Digital Legacy Conference event website
- Alzheimer’s Society’s Dementia Friendly Charter
- National Council for Palliative Care’s Free downloads
- British Medical Journal’s Palliative Social Media
- Dr Kate Granger’s ‘A doctor & terminally ill cancer patient musing about life & death’ blog
Support material for your website
- Digital Legacy Association text (about digital assets and digital legacy) for your website Digital Legacy Association text for use by external websites (.docx)
- Digital Legacy Association images for use on external websites (click on the images below to view. Then right click and save / download the image if you would like to use it.
- James Norris (Founder, Digital Legacy Association) speaker biography.
- Research & reports carried out by the Digital Legacy Association research page
- PDF highlighting some of our work Digital Legacy Association – Resource Links
Support we have received
We would like to thank those who have provided kinds words and encouragement for what we have embarked on.
‘Social media has a key place in our lives now, and we are learning that it becomes even more crucial as people face the end of their lives. It helps patients stay connected and boosts self esteem. But patients and those special to them don’t know how to manage this personal vital resource after a death – memories, music, photos and messages are lost. We are delighted that the Digital Legacy Association is being launched at our annual Hospice UK Conference for over 700 staff working with families at the end of life’ – Dr Ros Taylor MBE National Director for Hospice Care, Hospice UK
“Ensuring people understand how to protect and pass on their digital legacy is an increasingly important issue, which is why we are delighted that the Digital Legacy Association has been launched. Talking more openly about dying, death and bereavement benefits us all, as does putting plans in place for when we are dying, and for after our death.” – Claire Henry, Chief Executive of the Dying Matters
“In recent years, the ways people choose to remember deceased family members and friends has changed. Trips to the cemetery are replaced by online memorials and social media sites which can be updated regularly and accessed freely. Healthcare professionals need to engage with service users to discuss digital legacies. This, in turn builds confidence in discussing dying, death and bereavement. St Christopher’s are pleased to have supported DeadSocial in the foundation of the Digital Legacy Association.” – Ruth Sheridan, Director of Supportive Care, St Christopher’s Hospice.
“The number of people living with life-limiting conditions requiring good forward planning for when they get unwell is vast. In hospices, the community and in hospitals, many patients are asking their healthcare providers questions about dying, death and what happens after, including their digital possessions. Many healthcare providers do not know what advice to give with regard to the important issue of digital advance planning. The Digital Legacy Association should become a ‘go to’ organisation which patients, carers and healthcare providers can use for valuable information and resources.” – Dr Mark Taubert, NHS Velindre Trust
In the news
- eHospice (Launch at Hospice UK Conference)
- Dying Matters (Launch at Hospice UK Conference)
- British Medical Journal (WI-FI in hospitals & hospices)
- The Drum (How social media should be used to leave a legacy)
- eHospice (Digital technology should be better utilised to give those facing terminal illness more control over their care)
- British Medial Journal (Digital Legacy Conference 2016)
- Digital Legacy Association is launch to help professionals (10th November 2015) – Press Release
- Do we “unfriend” our Facebook friends after they die? by The National Council For Palliative Care (13th May) Press Release
- The Digital Legacy Association urge professionals to better support patients with their digital estate. (14h May 2016) Press Release
Tweets from the Twitter vine…
— ehospicenews (@ehospicenews) November 11, 2015
— Andrew Grey (@ithinktoomuch89) November 11, 2015
— Stephen Clark (@SteveClarkEsq) November 11, 2015
— #hellomynameis Joy (@JoyWharton1) November 10, 2015
— Dying Matters (@DyingMatters) November 12, 2015
— Ash Adair (@AshAdair) November 20, 2015
— Together4ShortLives (@Tog4ShortLives) May 28, 2016
— Dr Ros Taylor (@hospicedoctor) May 14, 2016
— Kate Parkinson (@ParkinsonKate) May 13, 2016
— ehospicenews (@ehospicenews) May 13, 2016