Following quantitive research from our first digital death survey and qualitative research obtained from the general public and professionals we decided to develop a training course for hospices. The initial course was expanded into a workshop and it’s delivery was scrutinised and reviewed by St Christopher’s Hospice. With the kind support of St Christopher’s Hospice, Hospice UK and Dying Matters we developed and expanded the workshop’s content and improved it’s delivery. We also published the only digital asset and digital legacy framework for health and social care professionals.
The Digital Legacy Association have ran hospice training courses and support digital legacy champions at:
- St Christopher’s Hospice London
- St Francis Hospice Berkhamsted
- Royal Trinity Hospice, Clapham
- St Joseph’s Hospice, London
- St Elizabeth Hospice, Ipswich
- Marie Curie Hospice, Hampstead
We have also trained hospice professionals outside of the hospice environment at events, conferences and courses ran by Dying Matters, Byw Nawr, Cruse Bereavement Care, The End of Life facilitator Network, Macmillan, Hospice UK, The Association of Palliative Care Social Workers, The Institute of Legacy Management and at our own events such as The Digital Legacy Conference,
We have since developed a range of courses, presentations and workshops suitable for both internet savvy professionals and those who have little or no knowledge of social networks and online platforms (like Amazon, Facebook, iTunes etc). Our workshops empower professionals with the knowledge and confidence required to provide advice to patients and families in areas relating to the internet, social media and connected devices. Once each professional feels empowered they are supported when applying it to their own practice.
Areas our training often include:
- An overview as to how communication, grief and death has changed due to the Internet.
- A comprehensive overview about the main online platforms and how they work.
- A comprehensive overview about connected devices and how they work.
- Step by step guides as to how we can prepare for death on each platform online.
- Step by step guides as to how we can prepare for death on each device.
- A comprehensive overview about the platforms children in the UK are using.
- Guides as to how children and their parents can prepare for death on each platform.
- What the implications are for online friends, family members and followers of the deceased when someone dies.
- What are the implications of death online in relation to law and each platforms terms of service.
- How friends and families can attain access to photos and videos of the deceased that are saved online.
- How to assist patients with passing on their data to their next of kin.
- How friends and family members can delete social media and online accounts on behalf of the deceased
- How friends and family members can address and delete an upsetting comment left on the deceased’s social media account.
- How friends and family members can use social media and online tools when arranging a funeral.
- How social media and digital platforms can be used and optimised for legacy giving
- How friends and family members can take comfort from the deceased’s social media accounts.
- What the main triggers for digital legacy and digital estate planning conversations
- What the main cues for digital legacy and digital estate planning conversations. How can cues be acted upon
- How to train colleagues about digital assets and digital legacy
- How conversations around digital assets and digital legacy can be used to evoke wider conversations (for example advance care planning)
- How to change practice and diffuse information within your hospice
- How to influence and overcome internal obstacles to help improve hospice practices
Ongoing support and impact analysis
We are able to provide ongoing support for your hospice, care home or hospital. This may include:
- Regularly updated support material for professionals
- Regularly updated support material for patients and their families.
- Telephone support for professionals and digital champions (10am-7pm Monday – Friday)
- Patient satisfaction surveys.
Bespoke courses and think tanks
We have also ran a range of bespoke courses and think tanks for hospices, carers and patients. These can be tailored to your specific requirements and the needs of patients and their families.