Reports & Research

Research with partners

We undertake various research and quality improvement projects with Universities and Academia. Partners to date include St Christopher’s Hospice (UK), Siena Collage (USA) and Black Country Healthcare NHS Foundation Trust (UK).

We have also supported and licensed (for free) the reuse of of our Digital Death Survey to Hogeschool (Netherlands) and HMP Medical College (India). Versions of our survey has helped to further advance areas relating to death in the internet globally inside and outside of academia.

Our Flagship - Digital Death Survey

The Digital Legacy Association run the Digital Death Survey to help explore attitudes and behaviours towards death and bereavement in today’s increasingly, digital world. Data in the 2026 report will be made ‘open access’ and available for editors, educators, academics and society at large. Insights obtained have been used in the New Scientist, within countless publications and across various forms of media.

The full Digital Death Report 2026 will be published in mid 2026

Sample datasets, academic posters and reports from previous years

Academic reference (ResearchGate) click here.

Below is a variety of different datasets collected from the Digital Legacy Association’s Digital Death Survey since 2014. The data is displayed in different formats and contexts

The Digital Death Report 2021

Data from the Digital Death Survey 2020-2021 has been shared in the following academic posters

Why Digital Assets planning and Digital Legacy safeguarding should form a holistic approach to advance care planning

Presented at the 7th International African Palliative Care Conference 2022) Digital Legacy Association Poster - 7th African Palliative Care Conference

To download this poster for free click here.
Academic reference (ResearchGate) click here

Death, the internet and COVID-19 – Insights from the Digital Death Survey (presented at the European Association of Palliative Care World Congress 2020)

To download this poster for free click here.
Academic reference (ResearchGate) click here

The Digital Death Report 2018

Download the Digital Death Survey 2018

The Digital Death Survey 2017

An overview from Digital Death Report 2018 can be downloaded here. Analysis and early research was published and showcased at Hospice UK’s annual conference in November 2017.