The Digital Legacy Association is the professional body dedicated to raising the quality of end of life care in all areas relating to digital asset and digital legacy. Our mission is to help ensure that everyone’s end of life wishes are met both in the real world and the digital realm. We do this by supporting the general public and by developing standards, frameworks and toolkits with charities and organisations that address end of life.
James Norris (Founder & CEO) providing the Plenary at Palliative Care Congress (PCC) in Edinburgh, UK
Our work includes
- Co-developing digital legacy campaigns in clinical and non-clinical settings
- Developing public health campaigns and interventions for areas relating to digital assets and digital legacy.
- Campaigning and raising awareness around digital assets and digital legacy.
- Supporting the Digital Assets framework for the European Law Institute
- Advising the British government (Law Commission) to improve UK law.
- Advising the Law Society to improve solicitor guidelines.
- Working with NHS England and NHS Wales to develop toolkits and improve standards.
- Providing frameworks for healthcare professionals and carers to follow.
- Providing training courses and workshops for different sectors across the United Kingdom.
- Researching and developing best practice for both the general public and care professionals.
- Working with hospices and charities to develop their own processes in relation to digital asset and digital legacy support structures.
- Proving content and support for charities, hospices and the end of life sector.
- Partnering with technology providers and devising programmes that utilise technology, social media and connected devices within the hospice sector.
- Speaking at conferences and events .
- Organising the annual ‘Digital Legacy Conference’ to discuss and celebrate excellence within these new and exciting areas.
Free framework for healthcare professionals and carers
A framework has been developed by us along with technologists, healthcare professionals, educators and patients. It uses public data, patient feedback and a number of other sources to validate the framework and the proposed methodology outlined for care professionals and those providing end of life care.
To find out more about the Framework click here
Nationwide training
We train and support healthcare professionals and the end of life sector. If you would like us to run a workshop in your hospice hospital or local communal space please do get in touch.
Support for the general public
International Conferences and Congresses.
We are often invited to share insights at conferences and congresses. These include:
- SXSW (Austin, USA)
- European Association of Palliative Care (EAPC) World Congress (Berlin, Madrid, Rotterdam)
- Advance Care Planning International (ACP-i) (Singapore)
- The Next Web (Amsterdam, Netherlands)
- Digital Legacy Conference (International stops including Berlin, Rotterdam, Madrid, New York, and Taiwan)
- Click Summit (Lisbon, Portugal)
- Digital Funeral Professionals (Amsterdam, Netherlands)
- The European Law Institute’s Annual Conference (Vienna, Austria)
- Nationella Rådet för Palliativ Vård / Swedish Palliative Care Association Congress (Malmö, Sweden)
- Startup House (Hanoi, Vietnam).
Research & development
Our annual digital death survey explores societies ever changing attitudes towards death and bereavement. Unlike other such surveys and research it has a strong focus on how the internet has impacted on death, grief, remembrance and tradition. The survey can be answered anonymously and the results published.62% of us consider being able to access a deceased friend or family member's social media accounts 'important' or 'very important' - Digital Death Survey
Think Tanks
We have ran think tanks for healthcare professionals, hospices, CCGs and legal organisations."I learnt so much that I had never thought about" - Attendee feedback. Think Tank for Hospice of St Francis
Digital Legacy Conference
- The Digital Legacy Conference is a not for profit conference organised by the Digital Legacy Association. It has previously taken place in London, Rotterdam, New York, Bern, Berlin, Taipei and Online (during COVID-19).
Recent News
Digital Legacy Conference 2027 × Death Online Research Symposium 2027 – Announcement & Call For Speakers
The Digital Legacy Conference, 27–28 May 2027 | University of Birmingham, UK Call for speakers:
