We will be running our Legacy Pop-Up Booth for the Royal Trinity Hospice during Storytelling Week 2016.
Inpatients, outpatients and members of the general public are all welcome to leave a video message. This is an opportunity for private stories and favourite memories to be immortalised in film. The video content will then be provided to each person by email or as a DVD.
Shooting on a Green Screen / What is a Green Screen?
We will be filming using a ‘green-screen’ as a backdrop. Greenscreen’s are used to artificially add something in the background that isn’t there in real life. A common use of greenscreens is by weather reporters
Each video filmed at Trinity will have a photo added behind it. Visitors who bring their own photos will have them edited behind them in the video. This may add further context about a story that they are telling. When a photo is not provided we will use a background photo taken in the Royal Trinity Hospice garden.
Things to think about
- Try not to wear thin-stripy shirts, as your video may appear fuzzy when viewed.
- Consider bringing a photo if you would like it to be shown behind you in your video.
- There isn’t a right or wrong way to leave a message. It’s your video and yours alone.
- When you would like the video to be watched
- Who you are creating the video for.
What should I say?
You may want to tell a story about yourself or your family that you hold dear. Below are some further ideas as to what you may want to include:
- What is important to you?
- Who inspires you?
- Your family history knowledge?
- A story that you would like to be remembered and recited?
- What is your favourite saying (for example: always look on the Bright-side of life)
- What are the highlights of your life?
- What are the low-lights of your life?
- Where you and your family are from?
- What your life has been like?
- What advice do you have for those you leave behind?
- What is your favourite story, music, art, books, aftershave, sports team?
- What are your religious / political views?
- What your hopes and dreams are for your friends and family?
- When: Tuesday 2nd February, 11am-4pm
- Where: Clinic Room, Royal Trinity Hospice
- Price: Free
The Pop-Up booth will be open to: Trinity patients, staff, visitors and the general public. To find out more, email firstname.lastname@example.org or telephone 020 7787 1012.
If you have would like a printed photograph to be used in your video bring it along with you. We will scan your photo and give the original photo back to you. Once it has been scanned we will add the scanned version to your video.
Location: Royal Trinity Hospice, 30 Clapham Common North Side, London, SW4 0RN
We are currently going through the data from the digital death survey 2015. Thank you to the 250 people who completed in the survey and everyone who shared it amongst their friends and colleagues.
The Digital Death 2015 Report will be published soon. Below are two extracts from the report.
Dr Mark Taubert’s ‘Should WI-FI be free for the general public to use in hospices & hospitals?‘ BMJ article and learning of Lucy Watts‘ recent problems after being admitted to hospital has inspired the following poll.
You can read Mark’s article in its entirety here http://blogs.bmj.com/spcare/2015/11/30/free-wi-fi-in-healthcare-settings-luxury-or-prerequisite
*NEW – Since starting the poll a set of recommendations were submitted to Jeremy Hunt by Martha Lane Fox. One of her key recommendations that the NHS Estate should all provide free WI-FI by 2020. A response from the Digital Legacy Association can be viewed here: http://www.ehospice.com/uk/ArticleView…
We have decided to build a public Q&A area on the Digital Legacy Association site. This will provide support for both healthcare professionals and the general public in areas relating to digital end of life planning and digital legacy.
How the Q&A / forum is currently looking:
We are still tinkering with this feature however it should be ready in the coming days. A FAQ and response can be viewed below
Soon to be available at: https://digitallegacyassociation.org/questions
If you would rather complete the above within Google Forms rather than the scrolling interface above click here
The Digital Legacy Association has been launched to help provide guidance for healthcare professionals and patients and their carers. It was launched today at the start of Hospice UK’s annual conference in Liverpool.
“Over the last three years it has become apparent that healthcare professionals require support in this new and ever evolving area. By announcing the Digital Legacy Association at Hospice UK’s conference we hope to raise awareness within hospice sector and evoke discussion We are looking forward to attending, presenting and discussing this area within such an innovative and forward thinking forum.”
James Norris, The Digital Legacy Association
The Digital Legacy Association has been setup to ensure that those who reside in the UK receive the best end of life care in today’s digital and social media age. The Digital Legacy Association supports hospices and carers to help ensure that a high level of relevant support is delivered by healthcare professionals and in these emerging areas.
Over the last 10 years the way in which society plans for death, mourns and remembers their loved ones has changed.
62% of us consider being able to access a deceased friend or family member’s social media accounts ‘important’ or ‘very important – Digital Death Survey 2014
Today we released the ‘digital asset and digital end of life framework’ to educate healthcare professionals in this area. This document is free to download and will be updated each time relevant changes are made by online services (like Facebook, Google, iTunes etc). Changes will be carried out with the guidance of healthcare professionals, hospices, industry professionals and legal experts.
A nationwide training programme in digital end of life and digital legacy for healthcare professionals will commence from February 2016. Those wanting to express early interest in attending the course should visit: www.DigitalLegacyAssociation.org/training
‘Social media has a key place in our lives now, and we are learning that it becomes even more crucial as people face the end of their lives. It helps patients stay connected and boosts self esteem. But patients and those special to them don’t know how to manage this personal vital resource after a death so memories, music, photos and messages are not lost. We are delighted that the Digital Legacy Association is being launched at our annual Hospice UK Conference for over 700 staff working with families at the end of life’
Dr Ros Taylor MBE National Director for Hospice Care, Hospice UK
“Ensuring people understand how to protect and pass on their digital legacy is an increasingly important issue, which is why we are delighted that the Digital Legacy Association has been launched. Talking more openly about dying, death and bereavement benefits us all, as does putting plans in place for when we are dying, and for after our death.”
Claire Henry, Chief Executive of the Dying Matters Coalition
“The number of people living with life-limiting conditions requiring good forward planning for when they get unwell is vast. In hospices, the community and in hospitals, many patients are asking their healthcare providers questions about dying, death and what happens after, including their digital possessions. Many healthcare providers do not know what advice to give with regard to the important issue of digital advance planning. The Digital Legacy Association should become a ‘go to’ organisation which patients, carers and healthcare providers can use for valuable information and resources.”
Dr Mark Taubert, Velindre NHS Trust
Bloggers and editors wanting to download the Digital Legacy Association – Press Release Website